1
Birth and childhood neurologic history
Born prematurely with lifelong cerebral palsy and extensive childhood medical and surgical care. This is the beginning of the longitudinal record, not background that can be discarded.
HIGH Patient · Longitudinal story
The complete patient journey
Project Fionigan is an accessibility-first continuity framework developed by Nezrok Labs Inc.
Statements about timing or possible causes are labeled as documented timing, reported concern, or possible temporal association. They are not presented as proven causation unless a source says so.
Read the full governor email2
Neurologic testing at age 12
A childhood neurologic or neuropsychological test at approximately age 12 is part of the early record. The user reports that its pattern is materially similar to the neuropsychological findings obtained at age 55. The available public registry identifies the de-identified early-history source; the private original remains outside this package.
3
Adult medical history before FND
The record includes longstanding mobility impairment, orthopedic and spinal procedures, pulmonary and systemic medical history, and decades of adaptation before the later movement symptoms.
4
COVID, vaccination timing, and symptom escalation
The public story should preserve the documented chronology: COVID infection, vaccination and booster dates, subsequent upper-body symptoms, and the later escalation. Any relationship is described as timing or a reported possible temporal association, not as settled causation.
5
Cervical disease, surgery, and abnormal movements
Cervical imaging, treatment, ACDF surgery, and the onset of reproducible abnormal movements belong in the same chronology. Structural findings and later functional-neurology findings must remain visible together.
6
Specialty evaluation and NIH
The journey includes neurology, movement-disorder review, EMG findings, and NIH evaluation with EEG/surface EMG work. NIH became a central source anchor before the later emergency-care escalation.
7
Dr. Schutte’s note and the temporal-association question
Dr. Schutte’s note should be presented in its exact documented language and linked to the source. The public summary may state that the note tied the clinical history back to a possible temporal relationship involving COVID vaccination only to the extent the record supports that wording.
8
Emergency-care, psychiatric, legal, and agency escalation
The record then moves through the prolonged episode, emergency department, TDO, hospitalization, restraint allegations, human-rights complaints, Virginia Department of Health contact, disability advocacy, governor correspondence, and legal/records requests.
9
The trajectory changed
After repeated continuity failures, the response was not only another complaint. The user changed trajectory: organizing the record, building a one-page report, and preparing an abstract that could show how the failure happened.
9A
The accountability, VDH, CICP, and governor record
The CHRIS process, Virginia Department of Health complaint, CICP administrative claim, governor contact, disability-advocacy responses, FOIA work, and recent emails are part of the main patient journey.
10
Abstract 178
Abstract 178 is the formal origin point of the public website. It turned the five-year record into a conference-ready structure and led directly to the poster and one-page report.
11
Conference flare-up and live accessibility demonstration
At the conference, a real flare-up disrupted speech and communication. The website changed from a static conference support page into the live accessibility tool being used in real time.
12
Project Fionigan
The abstract, poster, one-page report, conference event, de-identified source trail, and governed continuity structure became Project Fionigan: an accessibility-first continuity framework that keeps human review in control.
13
Recording, music, and Bum Leg Records
The lived story also includes earlier recording work, Bum Leg Records, music as communication, and the continuing role of listening and identity.
14
Current emails, legal advocacy, and future additions
Recent emails to agencies, advocates, attorneys, and elected officials are part of the continuing story. New material should be added by date to the appropriate stage and linked to its source rather than placed in an unrelated section.